Claire Morgan 13/10/2025 Member StoriesNews

Hi, I’m Harry and I have Williams Syndrome – this is a rare condition, but it’s sometimes called the Happy Syndrome because we make people smile, we’re chatterboxes and very sociable.

Being sociable is important to me – I like to go out to the pub (I don’t like alcohol though), and I love music.

I have a Gig Buddy and I really enjoy going to gigs and music concerts.  Ticket prices are ridiculous though – the government should put a cap on the prices and make sure that there are more accessible tickets available for people like me.

 I have drum lessons and love Ru Paul’s Drag Race. I collect Brat Dolls and I also look after Tommy the therapy horse once a week.

Public transport around here is abysmal – mum and dad or my support worker take me most places as I have a mobility car.  Buses and trains are not that regular.  I wish taxis were cheaper and more readily available. 

I’d like to live more independently, close to my parents but in my own place. I’ve been on the waiting list for ages with Adra, the housing association. 

There’s not enough housing in south Gwynedd – and very little in terms of supported accommodation for those of us who need help to live independently.  There are so many groups and opportunities in the north of Gwynedd that we just don’t have down here. It makes me feel jealous and frustrated. 

I would be so proud of myself if I could live independently and I know my parents would like me to be settled somewhere with a good support network around me, especially as they are older parents and they are thinking about the future.

I like to speak up about what I believe in.  I feel strongly that standing up for your rights is important – particularly as a disabled person.  Otherwise people take advantage of you. Don’t get on the bad side of me!!

The Homes not Hospitals campaign touched me very much too – people who display behaviour that is hard to manage are often reacting to the way they are being treated.  I do get extra passionate about things occasionally and sometimes it makes me swear!  Sometimes people talk to me about my behaviour and ask me if I’m ‘behaving well’.  Of course I am!  I try always to behave properly but I’m only human like everyone else.

I think carers in the UK need a pay rise. Their pay should reflect their status and their important roles in the lives of people with a learning disability.

I lost the volunteer who supported me to go to gigs recently – if they had been paid for supporting me to go to concerts and things like that, it would be a way of recognising their status and the importance of the role.

It’s hard when staff leave – I find it quite upsetting when they’ve been around for a while and then they move on.